Tuesday, January 22, 2008

Disabled in Gaza

From a Reuters report:

By Nidal al-Mughrabi

Reuters - Monday, January 21 02:02 pm

JABALYA, Gaza (Reuters) - Ready to act fast to save his life, Maher Al-Assali's young siblings stand at his bedside, poised to pump air through a hole in the 12-year-old's neck when the ventilator that keeps him alive cuts out.

Since being paralysed in a car accident seven years ago, Assali has depended on a mechanical ventilator to supply his lungs with oxygen. During the electricity blackouts that have plagued the impoverished territory for months, his family used to hook the machine up to a generator at a nearby clinic.

But Israel has cut fuel supplies to Hamas-run Gaza as part of sanctions it says are meant to stop militants firing rockets across the border. The clinic generator has shut down. So now, when the power grid fails, Assali's family keep him alive with a rubber hand pump.

"I am afraid," said the boy in a voice that was barely audible. "I could suffocate while asleep if the electricity suddenly goes off, I am afraid to die."

Gaza City plunged into darkness on Sunday night when the enclave's only power station shut down after Israel closed the borders and cut fuel supplies. The Jewish state has vowed to keep up the restrictions until militants stop firing rockets.

The plant supplies about 30 percent of the Gaza Strip's electricity but almost all power to the main city, where about half the territory's 1.5 million people live. The European Union and United Nations have urged Israel to lift the blockade.

The residents of Jabalya in northern Gaza still have some electricity but Assali's father said power usually cuts out several times during the day and night.

Hamas Islamists who refuse to renounce violence and recognise Israel seized control of Gaza after routing Palestinian President Mahmoud Abbas's Fatah forces in June.

Since then, Israel has opened U.S.-backed peace talks with Abbas but has shunned Hamas and isolated the Gaza Strip.

Clinics and hospitals in Gaza halted all but the most urgent surgery on Sunday for lack of power, and thousands of factors have stopped work. Shoppers have been stockpiling food.

Khaled Radi, spokesman for the Hamas-run ministry of interior, said hundreds of sick patients were at risk because there was no fuel to power generators. He said vaccines for children may soon go off because they cannot be kept cold.

Assali's family say they try to keep someone at his bedside at all times in case the
power cuts out. His eight brothers and sisters and even his cousins help out.

"I'm giving him some oxygen," said his 13-year-old brother Udai as he squeezed the rubber pump in his fist. "I don't want him to die."

Monday, January 21, 2008

Things that crack me up #37

This is a the latest of a series at my blog, usually consisting of an amusing visual image about disability. Visual descriptions are meant to both assist those who cannot view the image well, and encourage discussion when others see something different.

Braille webcomic
















Visual description: A one-pane comic, drawn very simply. A stick figure stands next to a sign posted on a wall that reads "Third Floor Office" with some Braille just below those words. At the top of the comic: "I learned to read Braille a while back, and I've noticed that the messages on signs don't always match the regular text." The stick figure touching the Braille signage has a thought balloon translating what she reads: "S-I-G-H-T-E-D P-E-O-P-L-E S-U-C-K ... Hey!"

Comic source

h/t to Andrea at Andrea's Buzzing About

Cross-posted at Alas, A Blog

Wednesday, January 16, 2008

Grand Rounds: Briefing the Next U.S. President

The latest Grand Rounds, a weekly carnival on medical and health blogging, is a collection around the theme of "Briefing the Next U.S. President." Check it out at Sharp Brains.

Cross-posted at Alas, A Blog

Tuesday, January 15, 2008

How does this political ad compare to that Nike ad?

The recent Nike ad featuring Paralympian basketball player Matt Scott generated lots of discussion here recently. Here's a political ad (link leads to YouTube video which is also described and embedded below) for an Oregonian candidate for Senate that has some things in common with the Nike ad: Both ads feature disabled men, both ads use disability and stereotypes of it to sell their message, both feature camera angles that highlight physical difference. Both use humor. Both feature the disability as a visual surprise at each ad's conclusion.

What do you think? Apart from what I would expect is a general preference for basketball over politics, do you like one ad more than the other? And why?

Here's an article in The Oregonian about Democratic U.S. Senate candidate Steve Novick, his campaign and how it demonstrates progress for the electability of disabled political candidates.

Description of the video from the article:

The Novick ad is a takeoff on the old TV game show "To Tell the Truth" in which three people all claim to be the same person, and it's up to a panel of celebrities to figure out who's the real one. In the ad, three tallish, handsome, buttoned-down actors claim to be Novick, then the camera pans to Novick himself -- or the tip of his head.

"I don't look like the typical politician, but I won't act like one, either," Novick says in the ad. "I will fight for the little guy."


Phoning It In






Last month, the state of Massachusetts issued a report on an August 2007 incident at one of the group homes of the Judge Rotenberg Center (JRC) where, on the basis of a phonecall, two boys were awakened in the night and repeatedly given electric shocks by the adults responsible for their care. If you're not already familiar with the JRC in Massachusetts or the aversive therapy used there on institutionalized disabled children, Mother Jones provides details in an article published this past September.

Eight states pay up to $200,000 per student, per year, to send otherwise "unplaceable" children with autism, psychological and behavioral disorders to the residential institution that uses aversive therapy to control many of its young inmates. Very generally, aversive therapy involves the use of a wide range of unpleasant stimuli to discourage specific behaviors. At JRC, aversives include electric shocks, food deprivation and isolation. On children.

The phonecall that led to the nighttime torture of the two boys turned out to be a prank. From the Boston Globe:

The report says none of the six staff members in a Stoughton residence run by the Judge Rotenberg Educational Center on the night of Aug. 26 acted to stop the harrowing events for three hours, despite ample reasons to doubt the validity of the caller's instructions to wake the boys in the middle of the night and administer painful shock treatments, at times while their arms and legs were bound.

The caller said he was ordering the punishments because the teenagers had misbehaved earlier in the evening, but none of the home's staff had witnessed the behavior that the caller cited. As the two boys' screams could be heard throughout the house, near-mutiny erupted among the other boys, who insisted that the accused teenagers had violated no rules. One boy even suggested the call was a hoax, according to the report by the Massachusetts Department of Early Education and Care, which licenses group homes.

The staffers, inexperienced and overworked, were described as concerned and reluctant, yet nobody verified the orders with central office, nor did anybody check treatment plans for the two teenagers to be sure they were permitted to receive that degree of shock therapy.
The damage was done before the staff at the JRC realized their "error":
By the time a call was finally placed to the central office and staff members realized their mistake, one teenager had received 77 shocks, well in excess of what his treatment plan allowed, and the other received 29. One boy was taken to the hospital for treatment of two first-degree burns.
The full account described by the Boston Globe is harrowing and beyond awful. The result of the state report is the suspension of seven JRC employees. But what I find telling is that because of the state investigation the following changes are supposedly being implemented at the JRC:
  • Expanded training for staff -- Many of the suspended employees had been working at the JRC for less than three months at the time of the August incident. High employee turnover is also suggested by Google search of the center, which pops up numerous ads for employment.
  • Institution of new telephone verification procedures -- Electric shock orders via telephone will continue to be part of the official procedure of aversive therapy, as is the incredibly extensive video surveillance of every moment of inmates' lives.
  • Elimination of delayed punishment -- On its own, prior to this incident, awakening inmates through administration of electric shock was not a violation of procedure? Children were routinely hooked up to shock equipment even while they tried to sleep, apparently.
Supporters of JRC and its aversive therapy say it effectively changes behavior. Of course it does. Extended torture with no end in sight tends to do that. One of the axioms of torture is that anyone can be broken, given time and cruel enough methods. There are some inmates of JRC receiving electric shock that have been there for decades.

This post is part of a Blogging Against Aversives event. You can find links to writing from other bloggers on the topic here. Or check out Amanda Baggs' extensive and well-indexed writing on aversives, behavior modification, JRC, and other related topics at Ballastexistenz. This post of Amanda's is especially informative. Feel free to add links of other writings on this in comments.

Cross-posted at Alas, A Blog

Thursday, January 10, 2008

New Disability Blog Carnival at [with]tv

The latest Disability Blog Carnival is up at [with]tv where Connie Kuusisto (also blogging at Planet of the Blind) has compiled a collection of links on "Disability in the Media." Check it out! 


Cross-posted at Alas, A Blog

Sunday, January 06, 2008

Technical Difficulties

So, my computer didn't make it to 2008. I'm hoping to be back online by week's end, posting, responding to comments and answering email.

See you then.