Sunday, August 06, 2006

Navigating

When I began this blog, it was in response to being the only person identifying as disabled in a private online feminist community where I felt constantly compelled to add my disability perspective to every second discussion that occurred. That got tedious for all of us, so my plan was to come here and write about how I interpreted portrayals of disability in books and film. My friends could read up as they chose, and I could get off my soapbox a bit more in our little community.

I knew there'd be some political commentary here now and then, but blogging is an addictive form of narcissism and I had much more to rant about than I suspected. Also, it turns out that every second book and film out there has some portrayal of disability but reviewing them all would slow down my consumption of them. And I'm a movie junkie, so that won't work.

Since high school I've maintained a strategy of not volunteering information about my impairments or health condition as a way to protect my privacy. It comes up often enough through other people's curiosity (and friends' genuine concern) anyway, and in political discussions I've found that my specific physical impairment issues can get confused with personal experiences that are caused by societal conditions.

My specific impairments are irrelevant to the general phenomenon of ableism (and nondisability-centrism -- which is a word I just made up). But increasingly I find I'm interested in sharing specifics to the extent that they might help me explore and discuss the variations in disability experiences that social reactions to various impairments create. I've been moving along the spectrum of ability my whole life (as is everyone, actually) and I think the changes in my experiences are relevant to many disability issues I might blog about. Disability blogging has also been exploding all over, so there's more opportunity to share variations of experiences as well as commonalities.

So. I'm going to be writing some stuff that includes more specific details about my impairments, though I don't yet know how much or what boundaries will make me comfortable. I'm reserving the right to answer or not answer any questions that might arise. I'm saying up front that whatever limits I impose are not about being coy or mysterious, though I'm pretty good at both, aren't I? Anyway, we'll see how it goes. The general theme of this blog remains the same.

6 comments:

Shelley said...

Go for it, and follow your heart.

Here's a posting I thought of when I read yours, by a blogger friend whose blogging is certainly informed by her disability (how could it not be), but is rarely focused on it.

So this post is kind of unusual for her.

Anonymous said...

I agree with Shelley... Follow your heart and do what you feel comfortable with. and I applaud you for doing this blog!)
-jen (gwen)

Kay Olson said...

Thank you both. And thanks also for the link, Shelley.

Wheelchair Dancer said...

Late to this one. Sorry.

Personally, I am having such difficulty in discussing/admitting to my impairments that I don't know where to start with this. So much of my ethic has been about not saying for fear of this that or the other.

Go for it. Sorry for the long quote -- you probably know it any way...


...
We rarely talk about these things (assistance for bodily functions: WCD) and when we do, the realities are usually disguised in generic language or gimp humor. Because, let's face it: we have great shame about this need.

Snip: WCD

And because this shame is so deep, and because it is perpetuated even by our own movement when we emphasize only the able-ness of our beings, we buy into that language that lies about us and becomes part of our movement, and our movement dances over the surface of our real lives by spending all its precious energy on bus access while millions of us don't get out of bed or get by with inadequate personal care.


Snip: WCD

If we are ever to be really at home in the world and in ourselves, then we must say these things out loud. And we must say them with real language. So they are understood as the everyday necessity and struggle they are.

....

Wheelchair Dancer said...

sorry. quote from

http://www.brava.org/Pages/Reviews/W_LastW.html

WCD

Kay Olson said...

WCD: Wade's work was one of the things that has influenced this change. Have you seen her perform her poetry? Fabulous.