Random Parts Replacement Fun
Ventilator traded in for one which does not randomly turn itself off:
Check.
New ventilator's obscure nonprescription default settings changed (by an adventurous nurse!) to match the other one I have here at the house so that I can use it without getting an immediate headache:
Check.
Trach changed by my mother while the local doctor watches so that she can stop having nightmares about what might have gone wrong during the emergency switch last month:
Check.
Appointment to get my scooter fixed so that it will stop drifting backwards randomly and risking sudden trach/vent tube crisis:
Check.
Plans with a local welder to fix the rack that holds my vent to my scooter so that it will stop threatening to fall off randomly:
Check.
Appointment for routine feeding tube Parts Replacement Event:
Call tomorrow.
Whew.
5 comments:
Great check list. I was giggling by the 3rd one. Not funny but it's the 1 AM@work thing.
You're such a liar. It's barely midnight. :P
Similar feeling even then. ;))
Ok...This post is marvelous for trying to explain to people why having impairments often is a *job* all by itself.
A less fraught example from my schedule past.//"What did you do all weekend?"
"Laundry"
"No, I mean what did you *do* all weekend!"
"LAUNDRY!"
(Sigh.)
Goodness. Kay, has anyone told you lately YOU rock? No, you ARE a rock!
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