Designer Babies and the Pro-Choice Movement
I'm suffering from Acute Blogging Malaise. So, I'll just post the link to this article and hope to say something relevant in comments if discussion on it erupts.
"Designer Babies and the Pro-Choice Movement" by Rebecca Tuhus-Dubrow in the current Dissent. A few excerpts:
In vitro fertilization (IVF) does not merely help the infertile to procreate; increasingly, it allows parents to determine the genetic makeup of their offspring. Initially, preimplantation genetic diagnosis (PGD) targeted severe childhood diseases, such as Tay-Sachs and sickle cell anemia. Now, more parents use it to screen out genes for late-onset, treatable diseases, such as colon cancer; sex selection is also popular. According to a 2006 survey conducted by the Genetics and Public Policy Center at Johns Hopkins University, 42 percent of 137 IVF-PGD clinics allowed parents to select for gender. Scientists predict that parents will be able to choose such characteristics as blue eyes or curly hair. Less certain, but plausible, is that scientists will be able to identify genes for more complex traits, such as intelligence and homosexuality. Genetic engineering, which will enable not merely the selection but the insertion of desired genes, is on the horizon. In the United States, this rapidly advancing technology is unchecked by any regulatory mechanism.and
Even without the borrowed buzzwords, the pro-choice movement would be uneasily close to the issue. Historically, pro-choice arguments have focused on the right to privacy and freedom from government interference. Legally, those are the terms that define reproductive rights. The landmark Supreme Court cases Connecticut v. Griswold (1965) and Roe v. Wade (1973) recognized the right of individuals to control their reproductive destinies. Legal scholars predict that when the question of selecting the traits of offspring inevitably arrives in court, it will be considered in this framework.and, although race, class and GLBT issues related to choice are prominently covered, the only explicit mention of disability and disability rights activists is bolded below:
Like it or not, pro-choice groups, then, will be compelled to take a stand. They will have to distinguish their concept of reproductive rights from that advanced by neo-eugenicists and to decide whether and how to endorse regulation of reproductive technologies without jeopardizing already tenuous rights. But along with these challenges come opportunities. By incorporating concerns about the abuse of reproductive technologies into a pro-choice platform, the movement can shift away from an individual-liberties paradigm toward a social justice orientation; move away from a single-issue focus on abortion toward a more comprehensive agenda; and form coalitions with other segments of the left.
This issue creates strange bedmates. The common political assumption is that conservatives would oppose the potentially radical change promised by reprogenetic technologies, while liberals would embrace the scientific progress they represent. And indeed, the religious right, concerned about the embryo and the blasphemy of playing God, condemns them, while some liberals are more inclined to welcome them on the grounds of “progress”—and, perhaps, in opposition to “culture of life” priorities. At the same time, economic libertarians oppose regulation of this three-billion-dollar-a-year industry, and a fringe of neo-eugenicists wants to create a super race. Qualms on the left include the potential exacerbation of inequalities, the eugenic overtones, and the environmental implications of meddling with nature.Go over and read the whole article here.
Other progressive contingents have their worries. Disability activists are wary of technologies that essentially aim to eliminate their community. Gay and lesbian people have an especially complex relationship to assisted reproductive technology. I spoke to staff at the GLBT (Gay, Lesbian, Bisexual and Trans-gendered) Community Center in New York, who said that to the extent that it helps them have genetically related families, they welcome the technology. But if a “gay gene” is ever identified, their communities, too, could be threatened. Many feminists are troubled by sex selection, but fear that regulating any aspect of reproduction could jeopardize abortion rights.



9 comments:
First, glad to hear from you, I was starting to get worried. I am sorry you are suffering from "acute blogging malaise" and although I do not know the why, I am all to familiar with the "how that feels". Actually, I suffer from it chronically. Anyway, I hope you "recover" soon, if that is what you hope for.
Second, I have to say I am torn by this issue. In general, I do not see this as a good thing, eugenics... eek ! And yet, I wonder: if there are certain reasonable things we can do on a genetic level that can prevent sickness, real pain and suffering, then why not *prudently* explore those options. But then on another level I think the article certainly does make a scary point about all this basically boiling down to consumerism, that all mighty fact of life that we seem less and less able to escape.
*sigh*
It is such a difficult issue and I certainly do not have the answers. But truth be told that while reading about it, I was uncomfortably reminded more than once, as the unavoidable geek that I am, about Gattaca, about what the implications of creating a "better race" would have on those who would inevitably be left out, because there will never be any way of really getting around that, there will always be those who, for one reason or another, would be left out of that "race".
I have not much productive to contribute......
Just my concern. And my opinion.
Those born with impairments know that the impairment is a part of the self--part of who we are...
If impairment is "fixed" out of existence over time, society as a whole will be less likely to accept difference as "equal" and people with impairments that remain as having the same rights as the expectation of a 'more perfect' person increases.
Do I want my profound opposition to one type of abortion, abortion performed *only* to avoid impairment to be used as a wedge to deny a woman the right to an abortion? No. She has the right
It is the law, whatever I may think
Do I want the women considering abortion *based on potential impairment alone* to ponder and weigh things in *full knowledge* that impairment is not an automatic passport to a difficult life?
Yes.
Hell, yes.
Margaret Atwood's ORYX AND CRAKE is our future. I consider the novel as important as BRAVE NEW WORLD or 1984. I've read it about a dozen times now.
If yall wanna know where it's all going, pick up the novel.
Glad to see ya, Kay!
I'm not entirely sure how I feel about this. On the one hand, the eugenic implications are frightening.
"I want my son to match my shoes."
But on the other hand, I don't know if "curing" some disabilities in the embryo is a bad thing, as long as it doesn't hurt "those left out."
Some thoughts: I'm not so much torn on this issue as I am frustrated by the lack of effort taken (generally and in the article) to articulate the complexity of the disability rights issues involved. To have it reduced to just "Disability activists are wary of technologies that essentially aim to eliminate their community" is disturbing in its polemic simplicity.
I don't believe I've ever heard any disability rights activist say that diagnosed fetuses with Tay Sachs -- a condition that is apparently 100% fatal at or soon after birth -- should not be aborted because doing so threatens the existence of the disability community. And yet, that is often how the disability perspective ends up being explained.
There's some good discussion on this article over at Body Impolitic, btw.
Gah. Such a complicated issue. I mean, get rid of cancer? Sounds great, sign me right up. But then there are all those further implications. And the concerns about who would control/monitor the technology. Basically, the article sums up the difficulty nicely.
Glad to see you back! I've been missing you!
isn't it in a way that the upper crust wanting 'designer" babies in a way? the want of blond hair, blue eyes,and a genus? but in a way how are they not missing the point?
Certainly. So happens.
The idea is great, I will say that. But the outcome can turn out horrible and backfire. I would be completly pro to this topic if this procedure was used strictly for the bases of improving health for the future by cure diseases, providing donors, etc. But, in the end, I believe people are going to take complete advantage of this and start to create their "ideal" baby which to me is not right. It's not right because it proposes the question if these bioengineered babies are even human and it will most like cause many disputes among so many opposing groups.
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