Disability in China
A Chinese woman by the name of Wang Fang declined a disability pension despite being born with feet that face backwards. This is news in Britain, if only, perhaps, so the intriguing pictures of the 27-year-old waitress and resident of Chongqing could be presented for the public to view.
Apparently, Wang's visibly different feet automatically qualify her for a disability pension in China, but she's refused both the "disabled" identity and the cash.
"I can run faster than most of my friends and have a regular job as a waitress in the family restaurant," she says. "There is no reason to class me as disabled. I'm like everyone else - except of course that I put my shoes on backwards."
She does wear her shoes backwards, and it appears that while her feet do truly "face backwards" they are not literally attached backwards so much as bent back so that she walks on the tops of her feet. (Visual description of the two photos here: Wang stands at the edge of some stairs next to another woman in the first photo, the camera shooting from below to show Wang wearing red bootie slippers worn backwards, with the heels facing the camera. In the second pic, Wang sits on a bench next to a child -- probably her five-year-old son -- while the same woman from the first photo supports her outstretched legs at the ankles. Wang, grinning broadly, is slightly blurred in the background, with the focus in the foreground on her bare feet. They are, indeed, turned backwards, and also small, wide, swollen, deeply callused and her toenails appear visible where most of us have pads on the underside of our toes.)
It looks painful. And it's fascinating, of course. That's why the pictures-- and the story as a whole -- exist in Britain's Telegraph. The news is that she denies being disabled or needing government money. The photos are evidence that she is visibly deformed and "legitimately" disabled. This little feature is newsworthy because she's interesting to gawk at. The story is too short to inform readers of any details about who Wang really is or what might be her true circumstances or full reasons for turning down the pension.What caused her feet to form this way? Is it common? Is there medical treatment that could have "normalized" her feet when she was a child? Would that have been helpful or completely unnecessary? Does she need special shoes or wear the big slippers all the time? Is there pain? Are there work accommodations that help her? If her waitressing job wasn't in her family's restaurant would she be employable in China? If her family didn't have her as a waitress, would the business fold under the simple strain of paying another employee? How would that disability pension compare to a waitress' paycheck? Would she have to give up her job (and paycheck, if the family business issues her one) if she accepted the pension? That last is almost certainly true.
We learn nothing of that, yet here is what the Telegraph makes sure to report:
Ms Wang, a mother to a five-year-old boy - whose feet face the more usual forwards - is not looking for sympathy, and is certainly no benefit scrounger.
Her son is normal and she is not one of those "benefit scroungers," you see.
Here are some basic facts about disability in China that might have enriched what is otherwise a "freak show" feature:
According to the China Disabled Persons' Federation there are about 83 million disabled Chinese out of the total population of over 1.3 billion people. That's less than seven percent. (By comparison, the 2000 U.S. Census (.pdf file) estimates that over 19 percent of non-institutionalized American citizens aged five and older have a disability. That's about 50 million and is considered by many to be a gross underestimate, depending on definition of disability used and how inclusive the count really is.)
Currently, only about seven percent of the one million disabled in China's capital, Beijing, are employed. Other statistics are similarly grim, though the Paralympics, the Olympic event for disabled people that directly follows the Olympics themselves, is coming as part of the required commitment a host city must provide for the international sport celebration. Great hopes are pinned on all the accompanying accessibility China must create in Beijing and the lasting improvements it may provide for disabled Chinese.
Disabled children sold into slavery to become street beggars for racketeers in Beijing are a significant social problem, and the coming Beijing Olympics likely mean that one way or another these young beggars will be removed from the public eye. Thus, Wang -- able to walk and run, employed, living with her family -- is likely among the "elite" disabled in China.
Still, it's likely that for purely financial reasons (never mind the social and cultural ones), Wang could not afford to accept disability status and the accompanying pension. Or, since she's able to walk, run and work, she shouldn't qualify at all for the pension, right? But then there'd be no story or reason to publish those photos.
h/t to Ruth at Wheelie Catholic
Cross-posted at Alas, A Blog



10 comments:
The link over at Alas isn't working--it doesn't lead to this page, just back to itself, if that makes sense.
I admit I wondered what "feet attached backwards" meant--I spend enough time in the ortho clinic at Children's Hospital to have seen a lot of shapes and angles, but that didn't sound right. So the photo did clarify that, I guess... still, the same information could be conveyed with a simple diagram that wouldn't invite the whole staring thing.
And then, there's the whole cultural history of Chinese women's bent, broken, and bound feet being fetishized. Maybe that's part of the media attention around Wang's story and the accompanying photos.
One more thought that occurred to me--she's only 27. She can run and walk and work now--but those feet might well be at greater risk for injury and the usually wear and tear of life into her 30s, 40s, 50s... will she have a chance to reapply for a pension, or is this a one-time opportunity for classification? Will the classifiers hold years of waitress work against her in a decade?
My brother was born at six months weighing 2½ lbs. Besides having a passel of learning disabilities which were only diagnosable later, he had a giant tumor on his back and both his feet were turned around backward, one all the way, one 90° -- or so our parents told us. My father related stories of having to apply the "therapy" of manually turning my brother's feet every single day while he was still an infant, and holding them in place while he screamed. My brother's feet seemed "normal" by the time I knew him.
This would have taken place in affluent, white Southern California in 1957-58. I do not know how true this story is and how much is exaggeration, but my parents were consistent in the telling of it.
***
Phrases like "benefit scrounger" are examples of the kind of conditioning which makes me reluctant ever to call myself disabled, even though I will admit to experiencing impairment. Incidentally.
"And then, there's the whole cultural history of Chinese women's bent, broken, and bound feet being fetishized. Maybe that's part of the media attention around Wang's story and the accompanying photos."
I couldn't help thinking of that too. Also, China (along with Russia and India) seems to be one of the default locations for UK papers to find "weird" or "quirky" stories about human "abnormality".
I tend to feel ambivalent about these kinds of "stories". On the one hand, it really isn't "news" in any meaningful way, and can pretty accurately be labelled voyeuristic, objectifying, "Othering", etc, etc. On the other hand, there's always a part of me that thinks "wow, awesome" whenever i see another of the many "non-standard" shapes and sizes that humans come in - especially when it's someone who seems to be happy with, even proud of, hir difference...
Can we reclaim the freakshow? I think there's a huge potential for debate in that...
Also, looking at those photos, in the one where she's standing up, she's leaning on the arm of the other woman - suggesting that perhaps she actually does have significant trouble walking. Also, her hands look like they're similarly affected to her feet, if less severely so... i'm thinking she has something like arthrogryposis (sp?)...
Thanks, Penny. It should be fixed now. But I don't seem to be getting my usual email notifications of new comments for The Gimp Parade. Apologies if I don't respond right away since I guess I'll have to search out new comments some other way.
Will the classifiers hold years of waitress work against her in a decade?
I wondered the same. And I did try to do some research on disability in China. I learned a little but not much about how being disabled actually works, or doesn't, for the average Chinese person, or woman.
Sara: I am intrigued by what exactly "turned backwards" means. Are the tibia and fibula in different positions than usual or what? The biology and developmental aspect of it fascinates me.
Shiva: I couldn't help thinking of that too. Also, China (along with Russia and India) seems to be one of the default locations for UK papers to find "weird" or "quirky" stories about human "abnormality".
Yes! I didn't add this to the story because my memory is vague, but I do recall having seen a number of posed "look at me and my deformity" photos from China before. I don't know what that means in Chinese culture, but there's an exploitative quality to it -- and perhaps a colonialization quality when in a British paper -- that really bothers me.
Can we reclaim the freakshow? I think there's a huge potential for debate in that...
Yes, lots of potential. I have to think on it before even trying to answer.
This partly inspired my latest blog post, which is (among other things) an attempt to deal with that question - your thoughts on it would be much appreciated...
Kay, I'm sorry. I don't know what it meant, either. This is just how it was described to me (over and over and over again) when I was too unsophisticated to ask detailed questions. And my brother doesn't remember, since he was just an infant. But my father and mother definitely said his feet were pointing backward, one all the way backward, and one off to the side, and that they "fixed" it by applying daily manual force -- per doctors' instructions. (Gruesome, right?) I have no idea whether it was caused by the same thing that causes this woman's feet to point backward. Obviously, my brother's feet weren't attached backward, either, or that manual force would not have worked.
I don't know anything about how well people with disabilities fair in China, so I won't comment on that, but what I will say is that the conservative-owned press in Western countries put stories like this together as a moral lesson for all the potential system-abusers out there. Do not be weak! Do not take charity! Be a good worker! Shame, shame, feel the shame in ever relying on your government to help you. If this poor Chinese woman with "backwards feet" can manage to work, then you, dear reader, can sure as hell work, too.
I think they grab people who are naturally curious about difference and then reel them in for the big lesson.
British newspapers have some sort of obession with "benefit scroungers." I've never seen anything like that kind of coverage anywhere else I've lived.
I can't speak for China, but disability in Korea is very hidden away. For a start, a lot of international adoptions still take place of disabled Korean children (something I know only vaguely about, as the information came from Korean adoptee friends who are not themselves disabled.) Secondly, it is still very common here for disabled children/people to be institutionalized, especially to orphanages, or so I've been told by Korean friends.
My experience of seeing disabled people here has not extended beyond a handful of beggars in the subways and a fair number of people who seem to have walking impairments, but are mobile.
The accessibility in Seoul is virtually non-existent. Most buildings have no elevators unless they are quite tall, the sidewalks are almost never flat in any way, only a few subway stations have elevators and escalators are quite regularly "under repair." Many toilet facilities are still only squat toilets, though I have noticed that modern toilet facilities do have disabled stalls most of the time. Ramps are almost unseen.
I've never been told straight out what Korean people think about disability, I suspect largely because the discussion tends to stem out of my stating that my sister has a disability. However, seeing as Korean adoptees are believed to have "bad blood" or "bad karma" that resulted in their adoptions, I would tend to suspect that disability might be viewed in a similar way.
Shiva: Excellent. I'll check it out.
Sara: Yes, gruesome, and horrifying for your parents to get instructions to twist his legs back into shape.
Domino: With that "benefit scroungers" comment in the article, I think it's fair to say you've nailed what the moral lesson is supposed to be here.
Amanda: I was hoping you'd weigh in. About a year ago, you may recall, it was all over British and U.S. news that North Korea separates disabled people according to impairment and sends them to "gulag"-like work camps. Here's one source of that story.
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