Tuesday, April 03, 2007

Medical professionals who are excellent, asses and part of a failing system

My posse and I trekked into the Twin Cities this morning (despite threats of dangerous weather that have come true all around Minnesota over the day) because of a malfunctioning G/J feeding tube that needed immediate replacement. The balloon part that inflates in my stomach to hold it all in place had deflated itself and the damn thing was trying to come out, which it cannot really do without also pulling away from where it enters my upper intestine (jejunum).

This deflation and migration caused me some discomfort but not any intense pain, the hospital that installed it worked me into the schedule this morning and it was easily replaced. I returned home before people started sliding off the icy roads and all is mostly well with my world.

But there's this little drama that plays out each time I get the tube replaced and I've only just today discerned the pattern among the cast of medical professionals I spend about a half hour with -- usually every three months. The nurse who comes to get me in the radiology recovery room (for outpatient procedures I am unfamiliar with) is always male, which is fine, but curious since nursing is a predominantly female profession. He's also always incredibly personable and relaxing to be around, which I appreciate since he is my host to Events That Thus Far Have Gone Smoothly But Do Involve Medical Risk. This host has been several different specific guys in the past year, all kind and competent.

The x-ray techs are also mostly male in this high tech procedure, though today there was one woman present other than myself and the nurse I brought with me from home. These x-ray techs do non x-ray-ish things like sterilize my stomach with Betadine and arrange the surgical drapes. I expect the specialization of the nursing and x-ray tech requirements somehow explains the male predominance I've observed, but I don't know exactly how or why.

The nurses and x-ray techs have all always been reassuring, professional, caring, kind, responsive -- everything you want in medical people. The doctor shows up for five minutes to yank the old tube out and thread the new one in. The guy I usually get calls me "sweetheart" and comes and goes rather politely but quickly. He seems skilled, and I appreciate that.

But here's the thing: He's a total ass to the other people and, in subtle ways, to my nurse. It's not one isolated incident. He's displayed asshattery on several occasions now, belittling the employees under him at the hospital and treating my nurse like she and others like her are either negligent or incompetent. Today's deflated balloon and faulty tube, he asserted to my nurse, was the fault of her and others in my employ who just won't leave it alone and must have manually deflated the balloon.

The doctor discussed this with my private nurse out of my hearing, basically giving her professional chiding and advice without ever once consulting me about my care. It didn't dawn on me until today that not only am I just a body on the table that he does a quick procedure to and then leaves, but he doesn't even consider me a partner in my own care of the equipment he installs in my body. Perhaps because I have a nurse, I don't know. Maybe it's part of his abrupt pragmatism and crowded schedule, but I doubt it's as simple as that.

Meanwhile, the other employees of the hospital that he seems to consistently belittle and treat like dirt continue to shower me with thoughtful care. It's unlikely he's like that just when I'm around once every few months, right? This is a working condition for these other professionals that serve me well and might someday decide that they don't deserve this crap and move on to another job.

There's gender, ableism and a kind of professional classism at work in these dynamics I observe, and it's taken me a year of quarterly encounters and some quizzing of my nurse to get a fuller picture of it, since I'm not privy to all of it that occurs even in my specific interests. And this is an example of medical competence, really. In all ways medical, it's basically a successful encounter. And yet that successful-ness seems precarious to me because of all the power dynamics involved with this one doctor, and that's been on my mind all day.

Genni McMahon, who blogs at Ilyka Damen's, has had much more dramatic, critical problems with medical care on her mind today. Read it all, but here's a taste:

My mother became very ill the night before last with a high fever, extreme body aches, and weakness. She’s 62, swims three times a week and uses her Nordic Track everyday. She’s a partner in an accounting firm, takes no prescription medicine, and is a health nut. She couldn’t get out of bed, so my sister and I went to her house and called her doctor; he’s a skilled physician, but like most of the system, he’s a doc for profit. His office told us to take her to the ER. There, we had a really bad experience and they managed to nearly kill her, which I’ll share in a moment.

First, though, let me say that in spending the entire day in an ER, with momentary breaks to go get things from my mom’s house and take a kid from one caretaker to another, I noticed what I think is the absolute cornerstone of What’s Wrong With Healthcare In America. I’m sure you’re curious as to my discovery, so I’ll let you experience it as I did.

7 comments:

Anonymous said...

I've had surgery several times in the past, but last year's surgery was the first time I'd really been old enough to be actively involved in what was going on. Despite this, I was ignored by most of the MDs I came in contact with - the surgeon, the anesthesiologist, the guy who referred me. At the time, I wrote it up to a combination of being temporarily communicating with notes on a white board (cumbersome) and being a young adult in a pediatric hospital.

But in the last few months, I've been going through a lot of prep work for the cochlear implant I'll be getting this summer. Even more than last year, this is a surgery where I am in control; it's entirely voluntary, and I'm the driving force making sure it happens. But even though it's now easy to communicate with me, I've found that the surgeon (a different one this time) just doesn't want to. In fact, sometimes the only way to reach her is to email the audiologist involved and have her intervene directly. Contrast this with the support staff - the CT techs, 2 audiologists, the surgeon's scheduling nurse - all of whom are friendly and wonderful and take the time to hear my concerns. I could echo what you said about your doc: "[s]he seems skilled, and I appreiate that ... But here's the thing: [s]he's a total ass to the other people [involved]."

One good example of this was in my blog a while back - the surgeon commented on my reliance on lip reading, then almost immediately turned her back to me. At the time, I couldn't understand why, and chalked it up to incompetence. Now, I'm thinking it's part of the "meat on a slab" phenomenon, and that Ook-the-patient has been separated somehow from Ook-the-person-I'm-talking-to. Doesn't explain her rudeness, both personal and professional, towards the support staff, though.

And yet ... everyone she works with (and treats like dirt) tells me that she's the best. That I'm lucky to have such a skilled surgeon doing the implantation.

Anonymous said...

That reminded me of a comic strip http://www.lucid-tv.com/020.html

xine said...

surgeons are known for their horrible bedside manner (or lack of manners at all). I just got an email this morning from a doc friend of mine which said: "Surgeons dont like people, they like people's parts." And that seems to sum it up. We are just a bunch of parts. At the same time, I realize that some of the best surgeons are those asshats. The surgeon who saved my brother's life was the biggest ass I'd ever met. But maybe one of the only people in the state who could have saved his life. I've come to terms with him, and am just happy that this particular asshole was the one on call that night.

Kay Olson said...

Ook!: The white board, or written communication, adds a level of difficulty, in my experience. Or to put it another way, it shows who respects you and who doesn't very expediently. Good luck with the upcoming surgery.

Xine: I've had some fantastic surgeons, not just technically but personally. I had one in my teens who was very comunicative and compassionate, and when a complication arose from my surgery that left me with a great deal of lasting pain (it was back surgery) and he was upfront that a nerve was probably bruised during the delicate and complicated procedure, I found the honesty comforting. It didn't diminish my sense of his expertise and made him trustworthy. I wish they taught that to all surgeons.

Anonymous said...

i am absolutely obsessed with this blog. just letting you know, in case blogger explodes or something.

-chris

Kay Olson said...

in case blogger explodes or something

Shhhhhh. Such things must not be spoken aloud.

(And thanks.)

xine said...

blue, that gives me hope!!!! I see a neurosurgeon in a month and I have been bracing myself for abrassive and short, in the hopes that I can put my ego and emotions aside and rate him based on knowledge, choices, etc. Hard to do, but maybe, just maybe I won't have to. Hope is a nice thing to have.